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Recommended Books on Huntington's Disease
Focus on Extrapyramidal Dysfunction (Journal of Neural Transmission. Supplementa) Experts in the fields of neurology, neuroscience, neurobiology and psychiatry review and present novel findings of basic and clinical research on extrapyramidal disorders and allied conditions. New insights on the nature of extrapyramidal dysfunction and its therapy in the fields of neurology, psychiatry and neuroscience are presented.
Mapping Fate:: A Family at Risk Confronts a Fatal Disease Wexler tells two stories, the one of her family's emotional odyssey after her mother was diagnosed with Huntington's disease, and the relentless efforts to find the gene and a cure, and the news that she had a 50/50 chance of getting it also. This book comes from her unique position of being both reporter of how scientists sought a cure and someone who could be saved by it.
Prostate Cancer Prevention and Cure The two most common cancers in men are skin cancer and prostate cancer. If you're male and over 50, statistically you have a 50% chance of getting clinically significant prostate cancer at some point in your life.
Contrary to the statistics, prostate cancer is often preventable. And it's curable in most men. But awareness is key. Prostate Cancer—Prevention and Cure tells you all you need to know about preventing, controlling, and curing this disease.
Devil's Dance "If I chance to talk a little wild, forgive me:/I had it from my father."
William Shakespeare, "Henry VIII"
Harry Stone's life is falling apart. At age forty-four, an English professor, he begins to dress in black and white and ride motorcycles in the night. After getting one of his students pregnant, he is forced to resign from the University. Unable to tolerate his strange, sometimes cruel behavior, his wife, Sandy, throws him out of the house. His younger brother Roger, an internist, is puzzled by his actions until he discovers that Harry is suffering from HUNTINGTON'S DISEASE, a rare genetic condition which he, himself is at risk to develop. Narrated by Roger, Devil's Dance is ultimately the story of brothers locked in a love-hate relationship under the shadow of this deadly illness.
Sensible Self-Help for Parkinson's Problems bY AN AUTHOR WHO HIMSELF SUFFERS WITH PARKINSON'S, this book stands alone in its genre, being the ONLY ENCOURAGING BOOK for people suffering with Parkinson's Disease, as well as other MOVEMENT DISORDERS imposing similar disabilities, by drawing together and interweaving into its ENCOURAGING fabric the Positive elements of Faith, Hope, Positive Attitude, Determination, Goals and Achievement. It provides the OTHER HALF of complete treatment by responding to the lack in conventional medicine of PRACTICAL PSYCHOLOGICAL SUGGESTION AND APPLICATION. It also teaches several entirely original methods Mr. Nash discovered through personal trial-and-error that stop or ease major symptoms.
Early Warning (Medical Ethics Series) This book presents 29 case studies that identify the most important ethical issues that are likely to emerge from new technologies of genetic testing and develops a series of guidelines based on those case studies. By providing the clinical origins and rationale behind each of its recommendations, the book will help readers think through the ethical issues and will assist them in the development of additional guidelines.
Portraits of Huntington's Portraits of Huntington's is a joyful collection of profiles, essays, and quotes for and about those with Huntington's Disease. Portraits of Huntington'sfeatures award winning artist Ruth Hargrave's incredible portraits of eight individuals or family groups who are all in some way touched by this genetic disease.
Joy is a choice. Happiness is based on a set of circumstances, and Portraits of Huntington's asks us to choose joy. As with Faces of Huntington's,in each chapter is thematic, Knowledge, Laughter, Patience, Compassion, Faith, Love, Hope, and Joy. Whether you are a person with Huntington's Disease, a caregiver, someone at-risk, a family member, a professional, or someone who simply cares, we all need joy in our lives. Somehow, despite the horror of Huntington's Disease, remarkable heroes are choosing joy every day. I hope their inspiring lives, coupled with my stories and Ruth's portraits, will encourage you to choose joy.
Huntington's Disease (Oxford Monographs on Medical Genetics, 45) It is now almost a decade since the identification of the Huntington's Disease gene and its mutation. Major advances in our understanding of the disorder have been made during this time. Since publication of the first two editions, much more extensive evidence exists on how the HD mutation
actually causes brain pathology. Experimental tools are now available to take this research further towards new therapeutic approaches.
Due to these major changes, this well-established book has been radically updated. An international group of leaders in their particular fields cover the major recent advances in the genetics and neurobiology of the disease. Developments in our understanding of how the molecular basis of the
disorder results in brain degeneration, with full coverage of transgenic animal models, neurochemical studies and advances in neuropathology are discussed in detail. The clinical sections cover both neurological and psychiatric aspects as well as new developments in therapy.
This book will continue to provide an invaluable source of information for clinicians and scientists involved with Huntington's Disease, including geneticists, psychiatrists and neurologists and basic research workers in genetics and neurobiology.
Huntington's Disease: The Facts Huntington's Disease is a genetically inherited condition, the result of severe nerve-cell damage in the brain. Due to the recent identification of the gene involved, and the debilitating nature of the disease, a great many more people are now affected either directly or indirectly (families and carers) by this condition. The majority of people develop the disease between the ages of 35 and 55, so for those that are aware of a genetic inheritance, there are enormous problems to confront - should you carry on life as normal? Should you start a family? In this, the first book on Huntington's disease written for sufferers and their families, advice is given on living with this disabling illness. Written as much for carers as for the patients themselves, the book aims to answer some of the questions that both sufferer and carer might have. With the identification of the responsible gene, genetic counselling is now available for those at risk of developing the disease. Though some may wish not to use these services, the book clearly explains the role of the counsellor, and what help is additionally available from the various patient organisations worldwide.
Stem Cell Symphony: A Novel Stuart Matheson, 32, is trapped in a nursing home as well as his body, eerily immobile at the last stage of Huntington's Disease. Kelsey Raye is a science writer feeling guilty about the recent deaths of her parents. She volunteers for hospice and is assigned to Stuart. She's a PhD, he never finished school, but they share a love of rock music and disdain of religion. They instantly bond.
As Kelsey plays her iPod daily for Stuart, he improves - an impossibility - and when she misses a few days, he backslides. She deduces that Stuart's gains follow hearing U2 or their imitators. Kelsey, who writes about stem cells, thinks the frequency of the arpeggios is turning on stem cells in Stuart's brain. She shares her idea with researcher Peter Holloway, but evil Nurse Smithies overhears and outs them to a tabloid. Meanwhile, Peter scans Stuart's brain. He's getting better!
All hell breaks loose when the tabloid hits. The government shuts down Peter's lab and confiscates Kelsey's iPod, while anti-stem cell protestors harass them -- just as Peter discovers how music stimulates stem cells. Then something unexpected happens. Did science fail, or was it the anti-science forces?
The underlying love story and comical cast of characters propel this parallel tale of emerging spirituality and an evolving medical technology. Many of the characters and scenes are based on real people, and the science dead-on accurate - with the one tweak of the music turning on stem cells.
It could happen.
© 2005-2008 Huntington's Disease Research Today. All Rights Reserved.
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